Melissa Verleg (middle) has been fighting for access to medication for her cystic fibrosis. (Photo submitted)

Vernon Walks to Make Cystic Fibrosis History

Okanagan community one of 11 that has events taking place Saturday, May 26

During Cystic Fibrosis Awareness Month, participants from more than 70 communities in Canada will come together to participate in The Walk to Make Cystic Fibrosis History on Sunday, May 26.

The Walk to Make Cystic Fibrosis History is returning to Vernon at Polson Park.

“This is the first walk recently. There used to be a walk here years ago but there wasn’t anyone to run it,” said Melissa Verleg, who stepped up to orgnaize the event this year. “I’m not sure when the last one was.”

Verleg, who has spent over a year fighting the government for rights to medication for her cystic fibrosis, attended the walk in Penticton with her family last year. She lost access to a medication called Orkambi on Jan. 20, 2018 and with it, she lost the ability to perform even the simplest of tasks such as cooking dinner and playing with her kids.

When The Morning Star reached out to ask if she has had any success, she wrote, “I don’t have much of an update pertaining to my fight for Orkambi. The government still hasn’t changed their stance on anything.”

Related: MLA pushing province and pharmaceutical to save Vernon woman

Related: Melissa’s battle hurts

This year marks the 15th anniversary of the Canadian Walk to Make Cystic Fibrosis History. Registration begins at 9:30 a.m. and the walk is set to take place around 10 a.m. Vernon’s walk is three km long and will end with a closing ceremony at 11 a.m. Organizers ask that no pets be brought to the walk.

“I welcome everyone to join me and Walk to Make Cystic Fibrosis History,” said Verleg.

More than 4,300 Canadians live with Cystic Fibrosis, the most common fatal genetic disease among Canadian children and young adults. There is no cure.

To register or donate, visit www.cysticfibrosis.ca.

Related: Vernon puts wheels in motion for bike to work week

Related: Tickets for annual hospital gala almost sold out

To report a typo, email:
newstips@vernonmorningstar.com
.


@VernonNews
newstips@vernonmorningstar.com

Like us on Facebook and follow us on Twitter.

Just Posted

Crowd pumped for MMA return to Vernon

First card in 10 years set for Saturday at Vernon Curling Club

Enforcement still tops with Vernon cops

Vernon-North Okanagan RCMP Supt. Shawna Baher says enforcement still a top detachment priority

Vernon Mission hosts International Overdose Awareness Day event

Along with Interior Health, the event will run Wednesday, Aug. 28, from 11 a.m. to 3 p.m.

Warmer fall weather could extend wildfire season: AccuWeather

Above seasonal temperatures are expected throughout September, October and November

Vernon ADHD workshop shows youths’ experience through art

Vernon ADHD Task Force is holding a final workshop Thursday, Aug. 22 at the Vernon Art Gallery

Paws! Join the cause and raise money for the BC SPCA

Sign up to walk in the annual BC SPCA Paws for a Cause walk

RCMP catch ‘erratic’ driving thieves; upon release steal mountain bike

The incident involved a police chase, taser, and a destroyed vehicle

New study suggests autism overdiagnosed: Canadian expert

Laurent Mottron: ‘Autistic people we test now are less and less different than typical people’

B.C. father tells judge he did not kill his young daughters

Andrew Berry pleaded not guilty to the December 2017 deaths

Heavy police responses in Kamloops connected to unfounded weapons calls

Mounties were seen in Westsyde and in North Kamloops on Tuesday night and Wednesday morning

Suspect drops white powder running from police near Kelowna playground

Kelowna RCMP responded to reports of two individuals swinging a chain in a park

Rosemount cooked diced chicken linked to listeria case in B.C.

The symptoms of listeria include vomiting, nausea, fever, muscle aches

B.C. seniors allowed more choice to stay in assisted living

Province doesn’t need to wait for a complaint to investigate care, Adrian Dix says

Power up: UBC Okanagan researchers designing battery that packs more punch

It’s a collaboration between the university and B.C.-based tech companies

Most Read